Ok, so I know I've complained alot about the state of design in the medical industry in general and in the world of diabetes in particular. I'm a designer by training and the idea that life can be made better through design problem solving is fundamental to my approach to the world. I believe that great design can improve quality of life, pure and simple. There are countless examples of this in the world, too many to list here. I take it for granted that if something is just "good enough" it's ripe for reinvention or redesign. It's just the way I think about things.
The reality that the stuff I have to use as a diabetic could be better designed has been a source of real frustration and sadness to me. The pump design is ok, but oh, it could be so much better. The other reality is the ability to actually change the design of the pump is slim to none. I'm involved in a couple of things where I can possibly contribute some input, but to actually be able to profoundly change such a highly regulated, complex medical devise is unlikely. For all intents and purposes at this point, I get what I'm given by the industry. Period. That fact also saddens me. It makes me feel caught and captive and passive. I don't like that feeling because it adds another negative to my experience of diabetes. I've come to believe that I can't do what is fundamental to who I am (ie. problem solve through design), which leaves me feeling ineffectual in such an important part of my life.
Well, it's occured to me lately that just because I feel this way about the pump, that doesn't mean I have to feel that way about everything I need to do with diabetes. Take medical alert bracelets for example. I'm supposed to wear one, but I don't because they are uncomfortable and antiquated and just plain ugly. I've not worn one most of the 21 years I've had diabetes, which means I've been lucky not to have had cause to need one, but also means I've been taking a risk. I'm a bit of a girl scout and so to not do something I'm "supposed" to is kind of a big deal for me. I've let the aesthetics of the existing state of medical alert bracelets (necklaces too) and the fact that they're just "good enough" get in the way of being as safe as possible. I'm not beating myself up for that fact but I do recognize it. I recognize it and realize that to some degree, this has always nagged at the back of my mind.
So a few months back, I decided to do something in my life around diabetes and design. I connected with a long-time friend about coming up with a new approach to medical alert bracelets. Beyond being one of my oldest and dearest friends, she has an impressive background in production and manufacturing and is also an accomplished designer in her own right. We talked and explored and noodled the possibilities around design and manufacturing. We researched and learned and talked some more. We sketched and mocked up and played with prototypes. We've been having some real fun and soon will have something to show for all our effort. But whatever the result, the good news is that I feel so much better because of this process. I feel better thanks to my great friend and her belief and dedication to this exercise. I feel better too, because I have remembered that I have power here and that design is about all kinds of problems, big and small. Even though I can't redesign the pump to my perfect liking, I can still design something that makes my life better and safer with diabetes. At the end of the day, this exercise has reminded me that first and foremost, I'm a person with diabetes, a designer with diabetes, not a diabetic without power. And that reminder is worth it's weight in gold (or surgical steel or titanium or silver)!




I agree! I was so disenchanted with the available medical bracelets that I also made my own. It felt better to have some control over the matter.
http://insearchofbalance.wordpress.com/2007/01/02/all-done/
I recently remade it so the tag is even smaller.
Posted by: InSearchOfBalance | July 18, 2007 at 09:13 PM
Me too, I have always made my own bracelets. My first one my parents and I planned together. We went to a jewlers and picked out the chain and the placket and designed it. The jewlers made it. I have learned with experience. On the first one the medical alert sign's red paint wore off, and I lost it b/c the fastener wasn't strong enough. The one I have now is great because the placket it made of two pieces on top of each other. The red enameling is on the lower one, so if the enameling ever wears off it can be filled in again. The top piece is cut out in the shape of the alert sign. I wear it all the time. Just this morning I glanced at it again, for the trillionth time, and it made me happy to wear it.
Posted by: Chrissie in Belgium | July 18, 2007 at 11:07 PM
Great way to channel your creative energy! I hear you re: the frustration with design. I just got a new cell phone yesterday, and it is cute, sleek, and a cool blue pearl color. It's one of the ones I could get "free" with my plan, so is not the latest greatest. But when I look at it beside my isulin pump, there is no comparison. From an aesthetic perspective, I'd much rather hang the cell phone from my waist. Let us know when your jewelry is available, and way to take charge where you can!
Posted by: carol | July 19, 2007 at 06:40 AM
I spent hours on the internet until I finally found a simple leather band with a silver plate at Fiddle Dee's Jewlery - its simple and just what I want out of a bracelet; I hate those big chunky silver chains!
Posted by: Ed | July 19, 2007 at 10:41 AM
If you do design and market the bracelet, let me know. I wear very little jewelry, and have always found the medic-alert bracelets and necklaces so unappealing that I've never worn them. I just might if I found a cool one.
Posted by: Amylia | August 07, 2007 at 11:35 PM