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The information I got from my CGMS was invaluable. For example, I learned that each morning at 10am I was spiking from 100 to 240 and then lowering again before I tested at lunch. (A side effect of a medication I was on that I hadn't even considered.) I was low so often for so many years that I had developed hypoglycemia unawareness, but with the low alarms, and the constant feedback, I was able to adjust my basals and bolus rates and now I'm hardly ever high or low (and if I'm either one I *feel* it).

Another eye-opener for me was how high I would spike post-meal. After a few days of my high alarm going off non-stop every time I ate, I started waiting 20 minutes after bolusing before eating (which may seem like a duh, but when I started pumping 10 years ago, they said to bolus and eat right away, and I never heard or thought otherwise) and now I almost never rise above 180 after a meal, and often am able to stay under 140 the whole time -- amazing!

One key thing I have realized now that I've had the CGMS system (I have a Minimed 522 pump and the corresponding CGMS) is that you don't *have* to keep it hooked up to you 365 days a year. Once I fine-tuned everything, if I have a few days where I'm not doing anything out of the ordinary (normal exercise, normal wake/sleep routine, normal work routine), I won't necessarily hook it up. I won't lie -- I'm so used to my pump that it's like a limb, but there were definitely moments with the CGMS that I just wanted to rip the thing out. Taking a little break now and then makes it much more comfortable (and affordable!) when I am connected to it.

Definitely check out the Yahoo! group for CGMS ... there are tons of posts about how to make your sensors last longer (getting at least seven days out of three day sensors), what tape works best, etc.

A thought I had (besides the "yes, I'm tired too" thoughts) was that maybe you can "play dumb" when insurance DOES cover things, and then have them buy the whole system for you! You know? Kind of like to pretend that you never had (or don't still have) the one you bought yourself... ??

And boy, rest up and restore sounds heavenly!

I'm sorry about the loophole. I know how that goes, too. I certainly can relate to feeling tired out. Life itself is hard enough. Add a disease that never goes away like Diabetes, and sometimes it feels like too much. Lay low and take care of yourself in all the cuddly, nice ways you deserve.

Thinking of you.

I understand the "tired". I also understand that the D takes so much brain space...I don't know whether to give it more or less in order to live this life well. I'll be interested in your experience with the CGMS. Enjoy your "rest" before the next wave comes.

The constant roadblocks are so frusterating!!! I am also working on getting the CGMS and have had no luck so far getting my insurance to cover the sensors. I am unable to afford them out of pocket, but I do know they would help a lot in my diabetes care. I feel that I have decent control right now, but I know with constant blood sugars I could be in even tighter control. Until insurance starts to pick up a portion of the sensors, I am going to have to continue to checking my sugars 8-12 times a day and make the best judgements with that information. Good luck to you in your quest!


Allison
Community Outreach
AgaMatrix, Inc
www.wavesense,info

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